My Romance

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Stomp 2013

Stomp 2013,
originally uploaded by Mema13.

As you know, I have been through a heck of a lot of change this past year. As the 1 year anniversary of Peter’s passing draws near, I find myself in a great place. I have come to terms with death and death has shown me that it isn’t such a bad-ass. It is a natural course that our souls take on this endless journey of life experiences. It is astounding to see both he and Carlos in my dreams…living it up. I’m glad that they’ve discovered each other and I am finally at peace with it all. That doesn’t mean I don’t get the occasional case of the weepies, but hey, I’m human and prone to weakness.
So onto the newer, more exciting points of my life: I am continuing to create and to astound myself with my versatility.

Poetry Slam 2013:

I got to see it from the sidelines this year as I entered the poetry scene too late to make the points needed to actually compete. I did manage to make a heap-load of like-minded artists who are amazingly talented and make me feel gratefully out of my element. Woo hoo! Sucking has never been so awesome!!

Life Goes On:

And of course, I am continuing to keep myself busy and find wonderful ways of romancing myself.  This keeps me in the game and reminds me why I’m still here…breathing.  What a blessing it has been!

A friend of mine asked me whether or not I had seen Stomp: the musical. I hadn’t, so they bought me a ticket and one for a guest.  Clearly, my sister was going to come even if I had to drag her kicking and screaming.  After she changed and re-changed her mind 50 million times, she caved.  We went on Sunday and had a blast!  For those who have not had the opportunity to see it, it is a wonderfully creative experience which uses utilitarian objects: brooms, pots, pans, plastic bags, etc. to make music and rhythmical sound.  Imagine banging on pots (as you did when you were a kid) and then incorporate tap-dance, clapping in a full on-stage production.  Any imaginative way of using trash is used and re-invented so that it’s a surprise to the viewer.  One segment utilizes lighters, another a set of shopping carts, still another uses giant metal drums.  They throw everything at you: including the kitchen sinks!  So if you’re ever in NYC looking for some ways to inspire your children or gift creatives like myself with a treat for the senses, you gotta go.  Just consider it a worthwhile hour and 45-minutes.  It was well worth it!

I Wrote A Song:

Yes, it’s exactly what it sounds like.  I wrote it because I’ve been messing around with the sounds on Soundcloud and that shiny red button which reads, “REC” was begging to be pushed.  So, yeah.  I wrote a song.  Now, whether or not I will ever share that bit is another story…

SO GO OUT THERE AND CREATE ALREADY!  There are so many buttons waiting to be pushed…

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When Lions Go To Sleep

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When watching nature shows, it always intrigued me how the King of the Jungle managed to always look menacing even while he was basking in the sun or sleeping. At any moment, he could decide that he was having a bad day and eat your face off. He’s so majestically frightening, that not even cubs he’s sired, nor the lionesses he’s coupled with, mess with him. Actually, the lionesses ‘do’ most of ‘the doing’ in the pride, traversing difficult terrain to feed her cubs, teaching them to hunt and kill. All the male lions generally do is lounge about and roar when they’re tired of hearing about her long day at work. As he lazes about protecting and defending his space, the world goes on around him. It is understood that the world goes on, but he is always the center: the Commander-In-Chief.

It is hard to see a lion dying. When he is hurt or disabled, his very nature questioned, can be painful to watch. What is a lion without his ferocity? The threat that he may at once pounce, injure, or kill is what makes him so terrifying. Take that away, and one is apt to plead for a mercy killing.

A Lion Tamed:

My lion had stopped being mine the moment he had lost his leg.  In order for him to feel whole he required all of his parts to be complete; present.  I saw him drifting into a combination of anger, bitterness, sadness, self-pity that I could not help lift him from.  Those were the darkest times when I could see him struggling to comprehend what it was to be a man.  Even as I tried to encourage him, he fell deeper into depression telling me that he had grown tired of his extended hospital stays, his aches and pains, his tired bones.  I knew that eventually I would have to leave but I didn’t want to desert him or violate that agreement we had from so long ago.

At 4:30am, on mornings when he was particularly difficult, I would be called upon to search for missing objects: keys, cell phone, socks…the trust was that I was going to participate in the hard times as well as the good times.  All of that was fine so long as my lion was engaged in the aspects of living; being alive.  If I asked him to get his own glass from the cabinet above the sink, for example, he would try and succeed in helping himself. There came a time though, that this task became too much for him.  It wasn’t just a simple lift from the wheelchair anymore.  It became an hour-long discussion on how uncaring I was being or how his bones hurt too much to stretch or how his fingers were swollen and sore.  Some of these things could have been true–but there was a part of my lion that used to fight with all that he had, days where he was fiercely independent–that showed he was going to come out on top.

Watching him psyche himself up by singing out loud or arguing with himself over some silly little thing made me know that my lion was roaring.  It was comforting to hear him rolling through the house complaining about everything.  It was soothing to have him make promises to me that needs would get met, errands would get run, food would get prepared: all with little input from me.  He would make it easy on me in exchange for those early, freezing mornings sitting on the cold hallway steps waiting for his Medical Transport to arrive, or the hours in various hospital waiting rooms just to have him refuse care and sign himself out.  He always reassured me when I felt I couldn’t physically handle the demands of moving a heavy wheelchair up and down the stairs or when I had to manually haul a heap-load of groceries up and down a lengthy hill.  He was like a self-sustaining battery full of the energy I needed in order to pry my eyes open every day.

There came a time when the lion did more napping than roaring.  I would walk in on him nodding off in his wheelchair in front of the big-screen television I’d purchased for him.  I wanted to keep him entertained enough so that he wouldn’t focus so much on the hectic parts of his day or what he was missing.  He always had  a sense of when I was around, but that heightened awareness dwindled away and I found myself puttering about the apartment, careful not to disturb my sleeping lion.

The Waiting Is The Hardest Part:

“There’s no comfort in the waiting room…Love is watching someone die.” ~ Death Cab for Cutie, What Sarah Said

When Carlos was well, we could enjoy long walks together.  When Carlos was well, there was always the possibility that we could go somewhere, do something.  When Carlos was well, we shared household chores and responsibilities.  When Carlos was well, we danced.  Then, it stopped.

Nothing happened all at once; it was a slow burn.  Arguments about the cigarette burns in the bed-sheets became arguments about whether or not I was going to ride in the ambulance.  Issues about space and Carlos’s inability to part with worldly possessions became constant.  The joke that he would be spending every birthday in the hospital became a horrible reality. The stays got longer, the complications dire.

But there was love.  Even when I was tired of it and thought I couldn’t take it anymore, he’d say something that would make me laugh.  Carlos would always surprise you with his charm and ingenuity and good nature.  I mostly stayed because it was intriguing to watch and to participate in his saga.  He collected bananas and made make-shift coolers from the complimentary plastic hospital bins, filling them with ice to the brim so he cold keep his juices cold.  We said “goodbye” a thousand times and “welcome back” when he returned. He would apologize for hurting me or my feelings.  We’d make amends for failing to do or not do something.  The challenges of sharing aspects of our personal lives with each other were bearable so long as we had each other.

The Final Visit:

I’d received a phone message at work from Carlos’s brother explaining that Carlos was in a coma. This. Was. It.  No one is ever prepared for death when it comes knocking.  Everyone wants to believe that they are ready (we’d had such a long time to prepare for it).  I didn’t really react right away.  I made certain it was not a ploy or hoax by asking for the one person who I knew would be there if this were all true: his ex-wife. When I had heard the news from her lips, I knew it was time.  The last time.

After work, I headed into one of the hospitals I knew well. It was the place I’d taken a photograph on one of the last waiting-room excursions I’d accompanied Carlos on. As soon as I’d walked in, I saw his ex-wife sitting on one of those antiseptic lounge chairs that are always a sickly 60′s metallic-green color.  She gave me a worried look, not unlike her usual demeanor.  I think I hugged her and asked how she was.  She answered in her usual not-easy-to-read dreamy tone.  I asked if she wanted to eat something and she said no.  We got on the elevator: she hit the button to Floor 4.  So that’s the floor where people go to die.  Not much was said in the elevator.  I may have asked how his daughter, Sara was taking it…how many visitors he’d had…whether or not they already read him his last rites.  Sara had been there.  He’d had many visitors…everyone that could make it, did.  His son was on his way up from Texas.  And yes, they had read him his last rites.  This. Was. It.

The doors opened and we meandered the long way around.  I couldn’t tell if this was the only way to get to him or not.  I passed various rooms and various beds.  I passed the nurse’s station.  Carlos had always preferred being in his own room, he never liked to share it with anyone.  When he was stuck in a shared room, he always complained that his neighbor was an idiot or coughed too much or smelled.  This time, he had nothing to worry about.  His ex-wife braced me for what was beyond the door.  I already knew this was going to be hard.  As the door swung open, I made a bee-line to his side, I didn’t see anything else around me.  I knew his ex-wife was there but it was like she faded away and the room became so small.  It was me and him.  We were the only two people on the planet.  The respirator tubes taped to his mouth and nose kept making that suction noise they make; his eyes were closed.  I touched his arm which was severely bloated as was his bottom torso.  The color of his skin was that jaundiced yellow I’d seen before.  His face was gaunt; he still had a full head of hair.  I touched the only part of his body that was open and empty: the left side of his neck; I kissed him there.  I said, “I’m here.  You remember that promise that I made you, Carl?  The one from a long time ago?  Well, I’m here.  I kept my promise.”  I bawled it out, sobbing over the man I saw nearly a year ago, a man whom I’d visited last on his own turf…

Taken For A Ride:

Carlos had coaxed me into visiting him.  He said that he had some money to give me for a cell phone bill I was still painfully paying for.  He said we’d have some dinner at our former local diner.  I reluctantly agreed because I did miss him.  I set the ground rules: he couldn’t be rude to me and he couldn’t talk negatively about anything, or I’d leave.  He agreed.

He met me at the station and hugged me.  It was different (of course it was) because I had held onto my physical distance and refused to be soft.  He always understood the change but would lay on the charm as sort of a peace-offering, his way of saying that he was going to be a good boy.  We chatted about his cell-phone and he asked me about some application that refused to work properly.  I was always annoyed by his demanding nature, but I accommodated him as best as I could.  When I couldn’t figure it out, I referred him to the service provider and he always understood. I had my limitations with what I could handle and what I could not.  He was gracious and kind because he wanted this to last.  He was skinny.  He was sickly pale.  He excused himself–mid-conversation–to vomit in the bushes.  We both knew he was very, very sick, but he and I never let on.  He hid his embarrassment by chatting nonchalantly about something else.  His topics were a lovely distraction.  I commented on his new wheels.  He loved the speed.  “You wanna take a ride with me?” he asked.  I laughed and said “Sure.”  I held on tight and he started to go…then faster and faster…picking up speed…I screamed out loud hollering that I was scared of falling…I knew he’d never let me fall… I held tightly to his throat…we raced all the way down the block and made record time…I laughed and laughed…he loved it as much as I did…then I got off so we could travel across the street to the eatery.  It was the best time.

Without meaning to, I had stayed longer than I expected.  He trapped me in the apartment he had changed and re-decorated after I’d left so as not to be reminded of me.  I realized how much he had let me put into the place, how much he let me have my way.  I ended up sleeping over (as there was no easy transportation back home) and he let me sleep.  I know he watched me sleeping.  I know he reminisced while I lay there.  We both knew that leaving him was the best thing.  He didn’t want me to see him really sick. He whispered in the dark and admitted to every mistake he had ever made.

My message to him was the same throughout the evening: Make your amends.  You want your soul ready for that final journey, Carl…he said he would try.  I believe he really did.

In the morning he walked me to the bus-stop.  We hugged and I gave him a friendly kiss on the cheek.  I told him to take care of himself.  He held onto his strength as long as he could until I got on the bus and turned around.  I saw his face.  I saw him hurting.  It hurt me, but I couldn’t do anything else for him.

The End:

His body jerked in the hospital bed.  His eyelids parted just a little before his eyes rolled to the back of his head.  They said his brain and his heart were fully functional…so I knew that he could hear me.  I kept telling him, “When you’re ready to go, you go…you hear me?  You just let go, Carl.  It’s ok…”  I cried and cried and his ex-wife left us alone.  “I know you’re a strong mother—-er, Carl.  So when you’re ready to go, you just go.  I will always love you.”  I stroked his arm and then I left.  He tried to communicate with me, but couldn’t.  It didn’t matter because we had both already said all there was to say. And as stubborn as he had been in life, he continued being that way in death.  They removed him from the respirator on a Friday and he died on Saturday, April 13th, 2013 at 11:26am.

This time, the lion went to sleep and received eternal rest.

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R.I.P. Carlos De Leon (09/22/62 – 04/13/13)

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Pito & I at Pershing Field Carnival

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Pito & I at Pershing Field Carnival

Pito & I at Pershing Field Carnival,
originally uploaded by Mema13.

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Joy

Death is like releasing your grip on a balloon just to watch it float up into the sky.  I watched Carlos, the balloon that once was mine, lying in a hospital bed for the last time.  Keeping a promise that I had made to him long ago, while his brain & heart still was aware. I saw him fighting to stay in this world; a fight that I knew he’d lose.  He was breathing through a respirator and looked nothing like the man I once knew. 
It’s funny the observations one makes when someone is dying: he still had a full head of hair he’d grown since the last time I saw him (after cancer treatments).  He’d stayed thin, but his lower torso was now bloated  with liquid his body was retaining.  His kidneys were failing, so he had a sickly orange tinge to his skin.
I kissed his forehead, the only part of him that I could reach given the breathing tubes.  He reacted when I told him that it was okay to go when he was ready. 
Still, after all of his family visits and prayers, he still managed to linger onto life; a stubborn knot tied around a wrist, a balloon that refused to be tugged free.  Always his terms, after all.
But when I received the news of his passing, it was as if the balloon that I held onto, the one that felt guilt for leaving him in the manner I did, could finally be set free. No one could understand how a person who had endured what I had can hold onto these things.  It has no answer. It can only be lived to be justified. 
All I can say is that I will miss the remarkable moments (good and bad) which shaped my understanding of what life, strength, love, and perseverance really means. 
Joy comes with knowing that there was a balloon to begin with and when it was time to let it go, boy! Did it fly far…

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Carnival Tales From The Hood

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Yesterday was bright and sunny enough to spend outdoors. Spring is at long last blooming…so I decided after my morning errands to attend the carnival running at a local park. Y’know, have some FUN… Of course I felt foolish going alone, so I asked my mom if I could take Pito (the five-year-old she cares for). She was ecstatic to get a break, so off Pito and I went to enjoy a sunny day. Pito’s a cool kid: always relaxed and prepared to have a good time. He struggles a bit with attention, but I managed to get him to understand the rules before getting to the park: 1) No running ahead of me 2) Stay where I can see you 3) Have FUN! All of which he followed to the letter even stopping to look behind him while exiting a ride just to make sure I was there (which cracked me up)! The first ride were the bumper cars. I knew this was gonna be fun…Pito is a confident kid, insisting on driving. He’s very gracious & unselfish even when he’s excited about something, so he made room for me. Mom had given me a purse with some cash & an instant camera for some quick photos to record the events, but I was struggling with keeping things together (How do moms do it?!) without losing my grip on all the items I was carrying. When the ride started, I couldn’t help laughing & screaming out loud as Pito spun the car over and over in a perfect circle as we crashed into the other cars. It was a good run too… I maneuvered the wheel in the opposite direction once or twice so we could get a little change of scenery, but we were having so much fun, it didn’t matter. When the ride was over, I checked to see if I had everything and Pito raced out ahead of me. I called out, “Pito! Remember our rule…” and he stopped, stood like a statue at the exit gate & waited until I had caught up. It was hysterical. Next, we walked toward the “Silly Shack” which is a mini obstacle course of strange, disorienting moving parts, rubber strings, chains, and the grand finale: a spinning spiral tube you have to balance on to get out. Again, hysterical. I kept reminding Pito of how many tickets we had left, and he was semi-listening as he made his way to the water-gun game. The prize is a dollar-store stuffed toy, but he wanted to play, so I had him play two rounds (even as I saw that two of the squirters were poorly rigged & damaged a little). “Again!” he said. But I reminded him that I didn’t have enough left (as the pay-to-play was in addition to the ticket purchase & $2 cash for each game was killing my buzz). So I managed to easily distract him with the reminder that we had 6 tickets left. I said, we can go on the bumper cars again or you can pick one last ride on something else. The kid’s sharp, so he chose carefully and wisely, picking the mini-coaster ride a stone’s throw away from the game booth. I knew he’d have to ride alone, but the ride is ridiculously small & the barricade is short enough that I could keep my eye on him at all times. Pito got on (no sweat) and buckled himself in. The ride called The Himalaya rides in a small circle mimicking (I guess) the hills and valleys of a mountain range. Pito placed the hoodie over his head after a few spins (I guess because his head was getting cold) and I kept yelling out his name as he spun past me.
I was reminded of all those rides in my past where my parents were within earshot, watching me spin round and round…It made me feel loved and safe and happy to see their excited, smiling faces even if they were pretending, even if it were short-lived (as rides often are). When it was done, Pito had a little snafu with the buckle cord, but he managed to get himself out of it. Out of tickets, I decided to go back to the water-gun booth, now empty, to play against Pito to win him a prize. He ended up with a stuffed brown & white puppy. Again, hysterical.
That’s when it happened: I lost my phone. I freaked out because a) I had just had the phone to take pictures of Pito on The Himalayas & b) my life is in that phone. Every thought, idea, memory exists on my phone. Worse yet, I don’t have any safety feature on my phone to prevent someone from accessing my personal life. So…I panicked. But with Pito with me, I couldn’t achieve that wide-eyed crazy lady look I’d normally wear. I opted instead for the “keep your head” attitude as I asked him to look on the ground while I asked other booth attendants if there was a Lost & Found. I discovered there was none in this street carnival, BUT because I didn’t give up easily and kept my cool, I found my phone. Some kind soul handed it to a ticket booth operator only steps from where I stood. That. Was. Awesome. I LOVE this city…
But I also love Pito. He remained calm and as a reward, I bought him some fresh-spun cotton candy, which Pito shared with me (I told you, I LOVE THAT KID). We found a space to sit while we ate & took ridiculous pictures above. The ones of me are courtesy of Pito (he always takes excellent pictures). Our day at an end, Pito calmly said, “You wanna go over my house?”
“Sure, Pito. Let’s go.”
His and my hands, sticky from the melted sugar, made me wish for handy-wipes. If I were my mother, I’d have them with me. We opted to grab a napkin from an icee truck, but it didn’t do much good.On our walk home, I kept teasing Pito that he won a chicken.
“That’s not a chicken… it’s a doggie…” “But how do you know?”
He started to make up words then because he really couldn’t define or compare the differences. I knew he was having a hard time so I helped him out. “Does a chicken have a tail?!”
“Nooooo…” answered Pito.
“Do doggies have tails?!”
“Yeah. Like that.” He pointed to two dogs in the street. Then we made the sounds that chickens make & barked like dogs…& growled like lions all the way home.

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Sister Moon

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Sister Moon

Sister Moon,
originally uploaded by Mema13.

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Death Becomes Me

There are a pile of dishes in the sink and the other day I changed my own light bulb.  Believe me…it’s a good thing.  Aside from realizing how inept I am at certain things, I am discovering just how awesome I really am at other things.  The experience is nothing new except for the fact that these revelations have arrived at a very tumultuous point in my life.

There are a great many truths about learning to live alone.

First, one has to conquer severe loneliness.  Unless you are a person who is totally adept at self-soothing, this can be a daunting task.  For years I’ve managed to always have a busy-bee lifestyle that involved catering to Carlos and the whirlwind that his tempestuous life demanded.  There were always people in the house and laundry lists of things he needed or appointments he had to keep.

Next, I’ve had to re-discover my interests.  This sounds so benign, but I really had to find out how to while away the hours…Dexter Marathon anybody?

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I’m continuing my education while sparking that part of me that’s in love with info by taking some FREE Coursera courses online. I’ve submitted my work to 2 online contests and I’m still trying to get better about going to the gym (epic fail this week…my bad) for yoga.

With each new endeavour, I reveal more to myself and it’s a great feeling. For example, I have a love affair with Sleep.
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I think it’s about that time to indulge. Good night!

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